My Personal Fundraising Page

Working for a cure for CJD

Although I had heard of Creutzfeldt-Jakob Disease ("CJD") in passing, I never really understood what it was except that it was very rare and that it was fatal.  Last year our entire family experienced what this cruel disease was when our beloved brother Peter was diagnosed with it in June.  We had to witness it taking Peter away from us a day at a time as CJD took over.  Because there is no treatment or cure, the loved ones of CJD patients can only support them as best as they can and spend as much quality time as they can until they leave us. Peter only remained with us until September 27.   It was a tragic and devasting experience, which is resounding with us in this moment as that anniversary date approaches. 

We have formed a family team to raise funds for the CJD Foundation for research into a treatment and a cure.  We are walking for Peter, who loved long walks in the woods, around the neighborhood or exploring new places.   Any amount of support you can consider is appreciated.  No amount is too small or too large.  Whatever amount we raise will be added to the collective amount raised by the walk and provide the CJD Foundation with new funds to continue the ongoing research to combat CJD so that other families might have hope that it can be treated and cured.   

Thank you for your consideration and support.  It is appreciated beyond words.

Paul

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only. 

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Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

How to Register

My Supporters

  • Marge Waldersen 8 hours ago $26.50
  • David & Barbara Llewellyn 8 hours ago $100.00
  • Peter Hillsman 8 hours ago
  • DAVID LONG Have a great walk, Paul. 10 hours ago $10.00
  • Martin Brown 12 hours ago $100.00
  • Paul Shoun 4 days ago $250.00
  • David & Barbara Llewellyn 8 hours ago $100.00
  • Martin Brown 12 hours ago $100.00
  • Gregory Graham 15 hours ago $100.00
  • Marge Waldersen 8 hours ago $26.50

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My Teammates

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.