Peter's Scrabble Rousers' Fundraising Page
Peter Shoun was a beloved brother, uncle, husband and friend to many.
He was diagnosed with the always fatal Creutzfeldt-Jakob Disease (CJD) in the spring of 2025 at the age of 67. Before diagnosis he had been experiencing some odd symptoms, including forgetting how to use a checkbook to pay the bills and noticing how shaky his own hands were becoming, which in turn impacted his handwriting. He also ended up losing his balance, for no apparent reason, falling and hitting his head which required 10 stitches.
On 7-12-25 Peter won 2 games of Scrabble, his favorite game. By 7-21-25, only 9 days later, he was unable to even come up with a starting word for the game.
With a CJD diagnosis, it is a blessing and a curse that the disease progresses so quickly. Of course we don't want our loved ones to suffer for an extended period of time, so for them, it's a blessing that it moves so fast. For those of us surrounding the person, it moves so quickly we have to continually adjust to their rapidly changing needs. And then we are left to wonder, "how could this happen?"
Peter's condition steadily declined through summer 2025 and he left us on September 27th.
The CJD Foundation is an invaluable resources for families affected by this horrible disease. Our team is helping to raise money for the CJD Foundation in Peter's memory. This will help them to support affected families and fund research for treatments and someday a cure for CJD.
About Fundraising
Donations of $250 and above are considered sponsorships.
Sponsorship Levels:
- Premier: $20,000
- Diamond: $10,000
- Platinum: $5,000
- Gold: $1,000
- Silver: $500
- Bronze: $250
Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.
The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only.
Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.
*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.
Our Team
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Paul Shoun $732.70
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Elizabeth Lavender Team Captain $26.50
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Rachel Lavender
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Anna Lavender
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Josiah Baker
Team Badges
View All Event BadgesOur Supporters
- Terri Plotas 2 hours ago $26.50
- Marge Waldersen 7 hours ago $26.50
- David & Barbara Llewellyn 7 hours ago $100.00
- Peter Hillsman 7 hours ago
- DAVID LONG Have a great walk, Paul. 9 hours ago $10.00
- Paul Shoun 4 days ago $250.00
- David & Barbara Llewellyn 7 hours ago $100.00
- Martin Brown 12 hours ago $100.00
- Gregory Graham 14 hours ago $100.00
- Terri Plotas 2 hours ago $26.50
Recent Activity
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Peter's Scrabble Rousers (In memory of Peter Shoun) has earned the Team : Fundraising Achieved Badge
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Peter's Scrabble Rousers (In memory of Peter Shoun) has reached their fundraising goal of $300.00!
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Paul Shoun joined Peter's Scrabble Rousers (In memory of Peter Shoun)
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Josiah Baker joined Peter's Scrabble Rousers (In memory of Peter Shoun)
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Anna Lavender joined Peter's Scrabble Rousers (In memory of Peter Shoun)
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About Strides for CJD
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.
Funds raised support our programs including:
- Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
- Research grants to help scientists make important discoveries and bring us closer to a cure.
- Medical education to help raise awareness and understanding of prion disease.