Zack Heger Foundation
The Zack Heger Foundation was founded for and now remains in memory of Zack Heger who struggled and lost his long and brave battle with Duchenne Muscular Dystrophy May 3, 2022 at age 29.
While the ZHF mission was initially founded to fund a cure for DMD and improve the lives of those with MD, we have shifted our purpose to focus on methods of improving accessibility and inclusivity to all people.
Team Heger's Fundraising Page
Margie & Rodney Heger will be running for the Zack Heger Foundation. Please read why they are running:
Margie: I am Zack’s mom. He is my hero. He never complained about not being able to physically do all the stuff his friends could. He never complained of pain although clearly he must have suffered. Zack had a passion for cars, history, Marvel movies, gaming, and spending time with his family. These were most important to him. I am running the Smuttynose Rock and Roll half marathon in memory of my hero, Zack, who lost his long and brave battle to Duchenne Muscular Dystrophy May 3rd, 2022 at age 29. Zack struggled going to public places, parks, getting on planes and even just visiting his friend’s homes due to lack of accessibility.
Our mission with Zack Heger Foundation has now evolved from finding a cure for DMD, to now helping to make public parks accessible for people of all disabilities including hearing and visually impaired, those with physical and mental challenges as well as our beloved Vets.
Please consider supporting our efforts by donating to my or any of my teammates run. We hope to make “fun spaces” accessible to all who deserve it.
Thank you for your support, Margie Lamir Heger
Rodney: Hello, I am Zack’s Dad. The day my son was born was the happiest day of my life. His first word was car. That one word became his passion, though he also loved legos, Star Wars, Marvel, video games, music and food – But cars dominated our lives. He designed the
2020 C8 Corvette that we own today. Out of all the things Zack loved, cars was something we could always do together. We would watch car videos on YouTube everyday and he would remember everything they said. He gave great advice on cars.
Zack is the best part of my life and has been since the day he was born. Every night at bedtime, I would get him comfortable and walk towards the light switch and he would say, “I love you, Dad.” Every night. No matter what. I miss my boy so much, I am brokenhearted. That’s why Margie and I will continue to fund raise, along with Zack’s family and friends, for boys and men like Zack, and others with disabilities to live a more accessible life.
I love you, Zack. I am and have always been, the proudest father in the world.