Rise Above Seizures Walk

Avery's Avengers
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Avery's Story

Avery was diagnosed with epilepsy in 2014 when she was 2 years old. She has a type of epilepsy called Lennox-Gastaut Syndrome. It is a rare syndrome with hard to treat seizures. She has been through many medications over the years and had fought through many side effects. About 2 years ago, we decided to try the Low Glycemic Diet and we saw great results. She was able to wean off all 3 of her medications. We finally saw some big improvements in her development (though she is still severely developmentally delayed). She is talking in 2 to 3 word sentences, learning sight words & has even started to read! Her seizures have started to creep back in again and she experiences many types of seizures. Recently her seizures have been Tonic Clonic (or grand mal) seizures that happen when she is sleeping. We have had to give her rescue medicine a few times and we now take turns sleeping with her. We are starting on a new medication called Epidiolex. The FDA recently approved this drug which is cannabidiol (CBD-a chemical component of the Cannabis sativa plant). We are hopeful that with this, along with the diet, she can achieve a healthy balance of seizure control & minimal side effects.

Avery is a happy 6 year old girl who LOVES to watch the Ellen DeGeneres Show, she loves to go to school, go swimming, she love animals, music and most of all-spend time with family. Her laugh is the sweetest sound and can get us through the toughest of times.

Our Team

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Our Supporters

  • Rose Williams October 2019 $100.00
  • Morgan Daugaard September 2019 $100.00
  • Romain, Melanie and Ruby Wiser September 2019 $100.00
  • Tricia and Peter Zubert September 2019 $50.00
  • Jill and Eric Englund Avery- The Englunds think you are amazing! ❤️ September 2019 $100.00
  • Tony Raser Love Tony & Mary September 2019 $200.00
  • BBDO Advertising September 2019
  • Darin Nelson Go Team Avery's Avengers! Love, Uncle Darin September 2019 $50.00
  • Mel Hazelwood Avery Grandpa Loves you September 2019 $100.00
  • Cindy and David Lutz Looking forward to the walk! September 2019 $100.00
  • Minnesota Rusco August 2019 $3,000.00
  • Monica Hazelwood Mommy & Daddy love you Avery! August 2019 $500.00
  • Allen and Shelly Erskine July 2019 $500.00
  • Tony Raser Love Tony & Mary September 2019 $200.00
  • Teri Pierce Love this little girl to pieces! August 2019 $200.00
  • Jay Deems Genuinely sweet little girl...Big Hugs Avery! July 2019 $200.00
  • Rose Williams October 2019 $100.00
  • Morgan Daugaard September 2019 $100.00
  • Romain, Melanie and Ruby Wiser September 2019 $100.00
  • Jill and Eric Englund Avery- The Englunds think you are amazing! ❤️ September 2019 $100.00

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    Awarded 06/26/2019

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    Awarded 08/20/2019

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    Awarded 08/27/2019

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