I was born with CMT, just like my Mom, Grandma & brother. The docs told mom I'd never walk, but she wouldn't accept that answer. I had my first orthopedic surgery, spent many months in casts, used a wheelchair, progresssd to using orthotics with physical therapy and eventually was able to walk on my own at around four years old. Every day is a new set of challenges, some days much worse than others. The reality of this disease is never knowing what is going to happen next. I'm so tired of living this way. Research is the only hope there is for a cure. Unfortunately, there is such a lack of awareness to this neuromuscular disease is that most people don't even bat an eyelash about it.