Our Team Fundraising Page

We have a great team for 2018 - this is Sweet Caroline's Crews 4th appearance in the Disney Weekend Races, in honor of our Sweet Princess Caroline!

Caroline was diagnosed with Rett Syndrome at 3.5 yrs old. As a parent, all the things you dream about when you find out you are having a little girl, (tea parties, sleep overs, prom, wedding) all fade away when you here these 4 words "she has Rett Syndrome".

As a family we dusted our selves off, after the initial shock and now take life one day at a time. We celebrate every milestone Caroline hits and We value every skill she is able to retain. Some days are easier than others, but her attitude and giggles make those rough days a bit easier. If she can push on through this, so can we!

She takes on life like a CHAMP!

Please help our team reach out goal, and help us get closer to a CURE! Our Sweet Caroline needs your help, and so do all the Rett Kiddos in the world...more and more are being diagnosed each year.

Every amount Help! Thank you for your continued support!

 

For those new to Rett, here is the definition from Mayo:

Rett syndrome is a rare genetic neurological and developmental disorder that affects the way the brain develops, causing a progressive inability to use muscles for eye and body movements and speech. It occurs almost exclusively in girls.

Most babies with Rett syndrome seem to develop normally at first, but after about 6 months of age, they lose skills they previously had — such as the ability to crawl, walk, communicate or use their hands.

Over time, children with Rett syndrome have increasing problems with the use of muscles that control movement, coordination and communication. Rett syndrome can also cause seizures and intellectual disability.

Although there's no cure for Rett syndrome, potential treatments are being studied. Current treatment focuses on improving movement and communication and providing care and support for children and adults with Rett syndrome and their families.

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Recent Activity

Our Supporters

  • Jason Prentice February 2018
  • John Paul Candler February 2018 $50.00
  • Rebecca Littleton February 2018 $35.00
  • Jennifer Welshons Good luck, Jeanna! Bring it home for Sweet Caroline :) February 2018 $500.00
  • Edith McCarthy Hope you have a great time! You are one of the hardest working people I know ... I admire you! February 2018 $100.00
  • Peter Li Trust January 2018 $5,000.00
  • Jennifer Welshons Good luck, Jeanna! Bring it home for Sweet Caroline :) February 2018 $500.00
  • Marilyn Li January 2018 $500.00
  • Marilyn Li Proud that you are running for OUR girl! xoxoxo Mom January 2018 $500.00
  • Anonymous December 2017 $500.00