My Personal Fundraising Page

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MY WHY!

My daughters journey has been the road less traveled ever since she was born.  She has a rare POGZ gene mutation now known as White-Sutton Syndrome.  She started her seizure battle in 2017 and was diagnosed with Epilepsy.  Once we have a seizure under control she seems to develop a different type.  2018-2019 school year has been the hardest with drop seizures happening 10-15 times a day.   In February 2019 she was diagnosed with Lennox-Gastaut Syndrome.  I walk with my Rare Warrior Princess because she is a brave fighter!  This tough cookie has battled her whole life and continues to come out on top! Her determination, stubbornness, and drive to be independent has helped her immensely! I  also walk to stop seizures, find cures, and save lives of all the Warriors with Epilepsy!

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My Supporters

  • Ashley Parent Sign Class Fundraiser March 2019 $70.00
  • Ashley Parent Sign Class Fundraiser March 2019 $70.00

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    Awarded 03/28/2019

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    Halfway there!

    Awarded when Anyone reaches 50 % of goal

    Awarded 03/28/2019

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