Weighted Vest
My weighted vest to commemorate Bella's weight at diagnosis (25lbs) and raise awareness of CMD
$21,469.00
achieved
$25,000.00
goal
of your goal reached
I’m Running the NYC Marathon for Bella and Cure CMD
Hi everyone,
I’m Mark Beare, and I’m running the 2026 TCS New York City Marathon to raise awareness and funds for Cure CMD, an organization that has meant so much to my family since my daughter Bella was diagnosed with congenital muscular dystrophy.
Ten years ago, when Bella was a toddler, I completed a triathalon wearing a 25-pound weighted vest to honor her and help others understand a small part of the challenges she faces every day. This year, I’m putting that vest back on for the NYC Marathon.
Bella is now an amazing 11-year-old who loves dance, choir, Girl Scouts, baseball, her friends, and her family. She faces life with incredible determination, joy, and resilience, and she inspires me every day.
Cure CMD has given our family community, support, and hope. As a Cure CMD board member, I’m proud to help advance research, connect families, and improve care for people living with CMD.
Thank you for supporting my marathon journey and this cause that means so much to our family. Every donation, share, and word of encouragement makes a difference.
- Mark
Weighted Vest
My weighted vest to commemorate Bella's weight at diagnosis (25lbs) and raise awareness of CMD.
Many Ways To Support
- Donate: Contribute whatever you can. No amount is too small!
- Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!
<Start a post. Copy page URL from your browser menu and paste into your preferred social channel post.use #curecmd>
Giving through a donor-advised fund?
Have a donor-advised fund, or DAF? You can recommend a grant to Cure CMD through Fidelity Charitable, DAFgiving360 (formerly Schwab Charitable), or BNY Mellon using the link below.
To give through your DAF:
- Click the DAF Direct link below.
- Choose Fidelity Charitable, DAFgiving360, or BNY Mellon.
- Enter your grant amount.
- If you are supporting a specific Cure CMD fundraiser, enter the family, individual, or team name in the Designation, Purpose, or Comments field.
- Submit your grant recommendation through your DAF provider.
Supporting a specific fundraiser? Please include the family, individual, or team name with your grant recommendation so Cure CMD can connect your gift to the appropriate fundraising page.
DAF gifts may not appear on the fundraising page right away. Once Cure CMD receives confirmation of your gift, we will connect it to the intended fundraiser as soon as possible. Thank you for your support and patience.
Have a DAF with another provider? You can still recommend a grant directly to Cure CMD through your DAF provider.
Cure CMD’s EIN is 26-2640975
My Supporters
- Laura Rockwell 3 weeks ago $106.00
- Michelle & Jason Edwards Go, Mark, Go! We’ll be cheering you on from Bend. Love you guys. 3 weeks ago $200.00
- Kenan Macomber We love you, Bella! 3 weeks ago $100.00
- Sean MacKenzie 4 weeks ago $106.00
- Jaiden Wurth 4 weeks ago $106.00
- Brooke Rock Go get ‘em Mark, keep up the fight / your family is an inspiration! 4 weeks ago
- Jordan Burcham All the love from the Burcham family! 4 weeks ago
- Sherryn Adair 4 weeks ago $106.00
- Devon & Emma Myers 4 weeks ago $53.00
- Holly Cowan Last month $53.00
- Matt Cillis Last month $106.00
- Sean MacKenzie Last month $106.00
- Jen & TJ Grossi Go Yogi!!! July 2026 $106.00
- Liz Fries Go Mark Go! We are sending lots of good vibes your way:) So glad Sam shared this with us, we are so happy to support! Fun to see the girls on Bella's wall!!! Can't wait to see you in our hood again, Bella! - Liz, Chris and Poppy July 2026 $265.00
- Nancy Sorlie July 2026
- Anonymous July 2026 $50.00
- Scanlon Scanlon July 2026
- Chris Agrawal July 2026 $500.00
- Shawnessy Negrotto Thanks for running for our kiddos!!! You’re a champ! -The Negrottos -we are cheering you on!!! July 2026 $106.00
- Ashley Stewart July 2026 $53.00
- Anonymous July 2026 $2,000.00
- Trevor Beare July 2026 $1,060.00
- Chris Agrawal July 2026 $500.00
- Shannan Engel June 2026 $500.00
- Chung Ip June 2026 $500.00
- Matthew reeves July 2026 $300.00
- Liz Fries Go Mark Go! We are sending lots of good vibes your way:) So glad Sam shared this with us, we are so happy to support! Fun to see the girls on Bella's wall!!! Can't wait to see you in our hood again, Bella! - Liz, Chris and Poppy July 2026 $265.00
- Samantha Zupan July 2026 $265.00
- Sean MacKenzie July 2026 $265.00
- Cindy Tuscano Love this and all the best to your family!❤️ July 2026 $265.00
- Anonymous June 2026 $265.00
- Kyle Gagner June 2026 $265.00
- Atul Dhingra July 2026 $250.00
- Michael & Brynne McLeish Run Mark run! Praying for a cure July 2026 $250.00
- Laura Heinz July 2026 $212.00
- Bentley Family July 2026 $212.00
- The Bishops Go Yogi!!! You are an incredible human with an incredible family June 2026 $212.00
- Cynthia Growden June 2026 $212.00
- Michelle & Jason Edwards Go, Mark, Go! We’ll be cheering you on from Bend. Love you guys. 3 weeks ago $200.00
- Laura Rockwell 3 weeks ago $106.00