Dear Friends,
Imagine receiving news about your health-or the health of a loved one- that will impact you for the rest of your life. You have a bleeding disorder. Your career, hobbies, where you live, family planning, and many other life decisions are now all affected. Your doctor can prescribe a treat regimen, but where do you turn for help and support in between office visits. Who has the most relevant experience or practical knowledge to help you navigate life with a rare and life threating chronic disorder?
Being part of a community that shares experiential knowledge often mean the difference between effectively managing a chronic disorder like Hemophilia or von Willebrand Disease, or being debilitated by it. Patient education, public awareness, support and advocacy for those affected are the principals at the core of our organization. We are Bleeding Disorders Association of South Carolina (BDASC), and we would love to have your support!
Many bleeding disorders are rare and the occurrence of knowing someone in your lifetime with the same disorder is highly unlikely. BDASCÂ provides individuals and families affected by bleeding disorders a support system to learn and network with others in the state who are also affected, helping them to develop a stronger support system that will benefit the emotional and physical health of individuals within the family unit. Having a bleeding disorder can be an extremely isolating experience and the feelings of knowing you are not alone in this chronic health struggle are unmatched in importance.
About Bleeding Disorders Association of South Carolina
Bleeding Disorders Association of South Carolina (BDASC), is a 501 (C) 3 Non-Profit organization, a Chapter of the National Bleeding Disorders Foundation (NBDF), and a Chapter Member of Hemophilia Federation of America (HFA). BDASC was founded in 1973 by a group of parents interested in promoting awareness, providing group support, and assisting other national hemophilia organizations.
Today, we serve all 46 counties in the state, currently providing education and support services to over 1200 members and their families in 41 counties. We provide the most current information and education in topics related to bleeding disorders, treatment therapies, support services, and advocacy. We provide financial assistance, scholarships, camping opportunities for families, children and teens, support groups, advocacy training and so much more. By bringing families together, members can learn from oneanother the important experienctial knowledge only they can provide.Â
By joining our fundraiser, you are helping to provide needed services, supporting research, and making a difference in the lives of our community. EVERY STEP YOU TAKE, BRIGHTENS THE FUTURE OF THOSE AFFECTED!
Thank you!
For General Information -Â Contact Us:
Walk Event Manager
Sue Martin, BDASC Executive Director
Call: (864) 350-9941
Sue.martin@bda-sc.org
Team Captain Information & Support
Samantha Javorka, Engagement Coordinator
Team Captain Chair
samantha.javorka@bda-sc.org
Additional Support and Contacts:
E-Mail: info@bda-sc.org
Website: www.BDA-SC.org
james zieche
