The NEC Society is the world’s leading nonprofit organization dedicated to building a world where no family has to endure the devastation of necrotizing enterocolitis (NEC). We’re led by a global community of patient-families, clinicians, and scientists.

May is NEC Awareness Month, and May 17 is NEC Awareness Day. This year, it's our goal to raise $150,000 to support the world’s first NEC Family Summit. By bringing families together in person, we will build the relationships, trust, and strategies needed to propel our mission. Together, we are creating a space where families impacted by NEC can collaborate and transform their pain into power and action.

Creating a fundraising page is only one of the many ways you can help join us in recognizing NEC Awareness month and supporting our our shared vision of a world without NEC. Learn more about how you can recognize NEC Awareness Month here.

Ronan was born prematurely at 28 weeks gestation. When Ronan was seven weeks old, he became very sick very fast. Ronan was diagnosed with necrotizing enterocolitis (NEC). Ronan tragically passed away from NEC in December 2020. Ronan’s loving mother, Nicola—now serves on the NEC Society’s Board—channels her grief into action by sharing Ronan’s story and advocating tirelessly for a world without NEC.

View Ronan's page here.

Luna was born at 27 weeks gestation. Initially, Luna thrived and surpassed expectations in the NICU. Despite her strength, Luna developed NEC at 33 days old. She underwent surgery, but the disease moved too aggressively. Tragically, Luna passed away in her loving parents' arms at 34 days old. Luna's mother, Stephanie, serves on the NEC Society's Board of Directors and is fundraising for a world without NEC in honor of her beautiful daughter. 

View Luna's Page here.

Sophie Marie was born the day after Mother’s Day and overcame many obstacles, including heart surgery. After recovering from her heart operation, Sophie was diagnosed with NEC and passed away just a few days later, which happened to be the day after Father’s Day. Sophie Marie's loving mother, Suzie, is fundraising to build a world without NEC in honor of her beautiful daughter. 

View Sophie Marie's page here.

Lyddia and Glenn are hosting their third annual Rexercise event in honor of their son, Rexton, who tragically passed away from necrotizing enterocolitis. In honor of Rex, Lyddia and Glenn invite their community to join them during NEC Awareness Month as they dedicate their workouts to Rex, wear their Rexercise gear, and host a donation-based workout class. Lyddia serves on the NEC Society's Patient-Family Advisory Council and is committed to building a world without this devastating disease in honor of her precious son. 

View the Rexercise page here. 

Tyler and Janelle are hosting their second annual Toast to Tiny Tummies event in honor of their son Cole, who survived NEC after he was born prematurely. Tyler serves on the NEC Society's Board of Directors. In honor of Cole's experience with NEC, the Vallano family is committed to raising awareness and support for a world without NEC so no baby or family has to endure the devastation of this disease. 

View the Toast to Tiny Tummies page here. 

Caroline's loving mother, Stephanie, is raising funds in memory of her beautiful daughter Caroline, who tragically passed away from NEC. In honor of Caroline, Stephanie is inspiring her community to support the advancement of NEC research, education, and advocacy, so no family has to endure the devastation of NEC 

View Caroline Faith's page here. 

Julie and Reid are hosting a NEC Day BBQ in honor of their son, Brooks, who tragically passed away from NEC. Julie and Reid have partnered with the NEC Society in honor of Brooks since 2017, helping to raise NEC awareness and advance research, education, and advocacy so we can build a world without this disease.

View the NEC Day BBQ page here. 

Olivia was born with Hypoplastic Left Heart Syndrome and was a warrior from the start! Olivia tragically passed away from NEC when she was 25 days old. Olivia's loving family is raising money in her memory to advocate for more research on earlier detection. 

View Olivia's Warriors page here.

Join Shannan and Casey in building a world without NEC in honor of their son, Cash, who tragically passed away from NEC. Every year, they host an event to raise funds and spread awareness about the urgent need to advance NEC research, education, and advocacy. Shannan served on the NEC Society Patient-Family Advisory Council and now serves on the Board of Directors. 

View the Courageous Cash page here.

Jenn & Noah are fundraising for a world without NEC in honor of their son, Micah, who tragically passed away from complications of the disease just before his first birthday. Today, Micah's twin brother, Zachary, is a thriving 8th grader, and Micah should be too. Jenn founded the NEC Society after the tragic loss of Micah. 

View Jenn & Noah's page here.

Milkify is a NEC Society Champion for a world without NEC. NEC Society Champions are industry and nonprofit organizations that support the NEC Society’s vision of a world without NEC. Milkify is inspiring its community to support the advancement of NEC research, education, and advocacy this NEC Awareness Month. 

View the Milkify page here. 

The UC Milk Bank is excited to come together to participate in NEC Awareness Month 2026, a fundraiser supporting NEC Society. Mother's own milk offers the best protection against NEC. When mother's own milk is not available, pausterized donor human milk is the next best option. Donor milk saves lives. 

View the UC Milk Bank page here. 

Medela, a Champion for a world without NEC, is committed to advancing research on human milk and the specific nutritional needs of the most fragile infants, and is dedicated to supporting breastfeeding and lactation care. This NEC Awareness Month, Medela is bringing together a global team to participate in the NEC Awareness Run/Walk on May 16—raising funds, increasing awareness, and uniting communities around the shared vision of a world without NEC.

View the Medela page here.