My Personal Fundraising Page

Let’s get inventive to raise awareness of CMT

A little about me....

I have Charcot-Marie-Tooth disease (CMT) type 1A and so does my daughter. I wasn't diagnosed until the age of 30, by which time I had passed it down a generation as many of us have done. Right now there are no approved treatments for CMT. This is not good enough. I want everybody to have access to treatment and ultimately, a cure. But this can not be done without proper funding. Let's pull together as one and raise as much as possible to stop this horrible disease in its tracks. CMT is never fussy. It can happen at anytime with one tiny gene mutation.  no one is immune from this risk. 
 
Please help me and the rest of the CMT community have a fighting chance so it's not still here in 2021!  The CMT Research Foundation is dedicated to finding treatments and cures within our lifetime. Please donate what you can.

$1,194.00

achieved

$10,000.00

goal

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My Supporters

  • Anonymous December 2020
  • Anonymous September 2020 $50.00
  • Anonymous September 2020
  • Karina Wilgeroth September 2020
  • Anonymous September 2020 $50.00