Monica's Fundraiser for a CMT Cure

My Story

My parents knew I had CMT when I was two years old. I was the seventh person in my family to be diagnosed. By the time I was five, I was wearing leg braces. By middle school, I was relying on a wheelchair more and more. By my mid-twenties, I lost the ability to stand completely. I am now a full time wheelchair user. 

My entire life, I've heard about the "future", about how CMT would have a treatment or even a cure. But as each year has passed and my disorder has progressed and wreaked havoc on my body, no treatments or cures have emerged. I've had painful surgeries and ineffective physical therapies, I've been hooked up to machines and shocked, poked with needles and sliced with scalpels, but I've never had a real treatment. 

Now, I am pregnant with my first child. There is a chance that my son will inherit this disorder from me. But there is also a chance that if he does, we could have a cure for him. Your donations help make that a reality.

The future is now, and I am tired of waiting. I joined the CMT Research Foundation because they're tired of waiting, too. By donating to CMT research, you're helping people like me--and all the generations after--finally realize the dream that has always seemed just out of reach. 

$838.80

achieved

$5,000.00

goal

of your goal reached

My Supporters

  • Julia Masiongale November 2022 $53.00
  • Stephen Daugherty November 2022 $100.00
  • Anonymous I was born with Cerebral Palsy, and have had a lot of the same experiences you have with kids, teachers, adults, and complete strangers! Here is to more research into CMT! July 2021
  • gricelda Munoz February 2021
  • Sarah Rench February 2021 $21.20
  • Christine Harrison I was diagnosed with CMT 2 in September 2019 after 15 years of dr appts and tests to figure out why my feet hurt and burned when standing. Finally soneone thought to do a genetic test. It has permanently altered my way of life and enjoyment of activities, December 2020 $265.00
  • Stephen Daugherty November 2022 $100.00
  • Barbara Selvey December 2020 $100.00
  • Cathy Thomas December 2020 $100.00
  • Julia Masiongale November 2022 $53.00